2022 Affiliate Summit Agenda

Welcome to the 2022 Affiliate Summit, we are so glad you are here. A few items of note:

  • Breakfast is included with your hotel reservation – Served Downstairs starting at 7am.
  • While every effort was made to keep hill visits limited to Monday before 2pm, we do not control the legislative calendar. Feel free to step out if you have a scheduled hill visit during the summit.
  • You will have been asked for a credit card at check in. Please note that any items charged to your room will billed to your card.
  • All meetings other than hill visits will be held in The Meeting Place on the 1st Floor.

Summary Agenda

Monday, September 19th

9:00 – 2:00 Hill Visits

2:00 – 3:00 Welcome

  • Affiliate Network: State of Play
  • Introduction to the Affiliate Executive Council and the Affiliate Network Work Groups

3:00 – 5:00 Affiliate Connecting Time

5:00 – 6:00 Social Hour

6:00 Dinner

Tuesday, September 20

9:00 – 9:15                       Welcome: Susan Elsworth

9:15 – 10:20                     Keynote: The Power of Laughter – Mallori DeSalle

10:30 – 11:50                   Workshop I: Where Are You Now – Leigh Tenkku Lepper

12:00 – 1:00                     Celebratory Luncheon

1:00 – 2:50                       Workshop II: Growing Your Advocacy – Mike “Keawe” Anderson

3:00 – 4:45                       Work Groups Meeting Time & Report Out

6:00 – 7:30                       Informal Affiliate Gatherings

Wednesday, September 21

Fetal Alcohol Spectrum Disorders Prevention and Clinical Guidelines Research Project

Workshop Agenda

Hyatt Place Washington, DC/Georgetown/West End

Objectives

  • Recognize prenatal alcohol exposure (PAE) and fetal alcohol spectrum disorders (FASD) in the context of alcohol and substance use disorder and the role of alcohol in society
  • Understand FASD from a historical and current perspective, the complexities of the disabilities, the lived experience, and the opportunities and challenges for public health and clinical intervention
  • Set the stage for identifying and addressing FASD in the military community, and envisioning the implications of project outcomes for all populations and systems of care
8:30 – 9:00 Meet and Greet
9:00 – 9:20  Welcome and Opening Remarks  
Tracey Koehlmoos, PhD, MHA, Uniformed Services University of the Health Sciences
Kate Boyce, Susan Carlson & Tom, FASD United
9:20 – 9:30                  Introductions
9:30 – 10:10FASD Overview: Impact & Prevalence  
Jeff Wozniak, PhD, LP University of Minnesota
10:10 – 10:40Alcohol and Substance Use Disorders
Rachel Sayko Adams, PhD, Boston University
Joshua Gray, PhD, Uniformed Services University School of Medicine
10:40 – 10:55 Break
10:55 – 11:25FASD Prevention – Substance Use Among Pregnant and Postpartum Women and Alcohol Screening and Brief Intervention
Amy Loree, PhD, Henry Ford Health System
11:25 – 11:55Stigma, Bias and Discrimination: Implications for FASD Prevention and Clinical Services
Kathleen Mitchell, MHS, LCADC, FASD United
12:00 – 1:00Lunch
1:00 – 1:30FASD Diagnosis – Comparative Analysis of 10 Diagnostic Methodologies
Michelle Kuhn, PhD, University of Washington
1:30 – 2:00FASD Intervention
Christie Petrenko, PhD, University of Rochester
2:00 – 2:15Break
2:15 – 2:55 Panel Discussion: Individuals and Family Members Living with FASD
Jenn Wisdahl, Moderator
Rebecca Tillou
Sean Bosquet
Laura Bosquet
2:55 – 3:15Exceptional Families Network
Austin Carrigg, Exceptional Families of the Military
3:15 – 3:35Blue Star Families
Jessica Strong, Blue Star Families
3:35 – 3:55FASD United Affiliate Network                                  
Susan Elsworth, FASD United, Indiana Alliance on Prenatal Substance Exposure
3:55 – 4:25Panel Discussion: Federal Response to FASD, Agency Overview
Bill Dunty, PhD, Tatiana Balachova, PhD, National Institute on Alcohol Abuse and Alcoholism
Elizabeth Parra Dang, MPH, Centers for Disease Control and Prevention
Dawn Levinson, MSW, Health Resources and Services Administration
Sharon Newburg-Rinn, PhD, Administration for Children & Families
4:25 – 4:40Closing Remarks
Tracey Koehlmoos, PhD, MHA
Tom Donaldson

Speaker Bios                                                                                   

Malloi DeSalle

Mallori a licensed therapist, which is a good thing because she is also a mother to three busy kids has been married for nearly 20 years. She is professional speaker, an obsessed Oreo hunter and a therapeutic humorist. A fan of humor and helping, Mallori uses her powers for good. Mallori has tasted Oreos from four continents and has even tried to get a shopkeeper in Spain to sell her expired cookies because she hadn’t tasted the flavor yet. The unyielding shop keeper said “Mallori was one tough cookie, but ultimately she is pretty sweet.”

Dr. Tenkku Lepper is Research Professor Emeritus at the University of Missouri and also Instructor at the University of Nevada, Reno. Her work has focused on providing education and training for health providers on prevention of alcohol-exposed pregnancies as well as education, care and treatment for those diagnosed with Fetal Alcohol Spectrum Disorders. During her tenure as professor, she received 20 years of continuous funding as PI from the Centers for Disease Control and Prevention and also from the Substance Abuse and Mental Health Services Administration. Dr. Tenkku Lepper designed a web-based training module for health providers, specifically focused on Alcohol/Opioid Use Screening and Brief Intervention that is utilized by professionals across the country. She is extensively involved at the national FASD United organization, serves on the Board for the National Papillion Program and is President of her own non-profit organization, NOFAS-Missouri.

Leigh Tenkku-Lepper

Michael “Keawe” Anderson

Michael “Keawe” Anderson has been a member of the FASD United Board of Directors since November 2017, and serves as the Treasurer.  He is also on the Policy Committee where he supports FASD United’s legislative priorities by applying his 23 years of policy and legislative expertise. 

In the public sector, Mike served in the U.S. Air Force for 28 years, retiring as Colonel with extensive experience in the Secretary of the Air Force Legislative Liaison Directorate. Following his retirement, he was Chief of Staff to U.S. Representative Don Young (AK), managing Young’s congressional staff to achieve the Congressman’s legislative and political agenda. 

Mike then transitioned into the private sector.  He ran a Chugach Alaska Corporation subsidiary, then managed Chugach’s business development in the Washington D.C. region, then was appointed Chugach’s first Director of Government Relations. He left Chugach having been selected the first Native Hawaiian to serve as the Native American Contractors Association Executive (NACA) Director.  At NACA, he advocated nationally for Native contracting as an economic development tool, and advised Native-owned businesses on small business policy, regulations, and compliance.

Currently, Mike is the Nakupuna Companies Director of Advocacy where he advocates for programs to benefit and support the Native Hawaiian Community by developing and executing plans to advance federal contracting policies and legislation that to optimize Nakupuna’s growth and efficacy.

Mike earned a master’s degree in Business Administration from the University of Northern Colorado, a master’s degree in Strategic Military Studies from the Air University, and a master’s certificate in Government Contracts from the George Washington University. He has a bachelor’s degree in engineering from the U.S. Air Force Academy.